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Title: Spanish Family Quality of Life Scales: Under and over 18 year old
Author: Giné Giné, Climent, 1948-
Vilaseca Momplet, Rosa María
Gràcia Garcia, Marta
Mora, J
Orcasitas, J.R.
Simón, C.
Torrecillas, A.M.
Salvador Beltrán, Francesc
Dalmau, M.
Pro, M. T.
Balcells-Balcells, A.
Mas, J. M.
Adam-Alcocer, A.L
Simó-Pinatella, D.
Keywords: Família
Qualitat de vida
Quality of life
Issue Date: 2013
Publisher: Informa Healthcare
Abstract: Background Researchers, professionals, and families have shown increasing concern with the family quality of life (FQoL) of people with intellectual disability (ID) and their families. The goals of this research were (a) to explore how Spanish families understand FQoL by developing 2 different measurement tools for families with a member with ID under and over 18 years old, and (b) to provide 2 diagnostic instruments that will be useful for designing action plans. Method The study comprised 4 stages: (a) focus groups, (b) expert assessment, (c) pilot study, and (d) normalisation and standardisation. The data were collected in 5 regions in Spain, and 1,205 families with a member with ID took part in the normalisation and standardisation of the scales. Results Both FQoL scales were consistent and have valid psychometric characteristics. Conclusions The scales have a diagnostic purpose for use in designing action plans aimed at producing significant changes in families'lives.
Note: Versió postprint del document publicat a:
It is part of: Journal of Intellectual & Developmental Disability, 2013, vol. 38, num. 2, p. 141-148
Related resource:
ISSN: 1366-8250
Appears in Collections:Articles publicats en revistes (Cognició, Desenvolupament i Psicologia de l'Educació)
Articles publicats en revistes (Psicologia Social i Psicologia Quantitativa)

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