Please use this identifier to cite or link to this item: http://hdl.handle.net/2445/104546
Title: Willingness to Know the Cause of Death and Hypothetical Acceptability of the Minimally Invasive Autopsy in Six Diverse African and Asian Settings: A Mixed Methods Socio-Behavioural Study
Author: Maixenchs, Maria
Anselmo, Rui
Zielinski Gutiérrez, Emily
Odhiambo, Frank O.
Akello, Clarah
Ondire, Maureen
Zaidi, S. Shujaat H.
Soofi, Sajid Bashir
Bhutta, Zulfiqar A.
Diarra, Kounandji
Djitèye, Mahamane
Dembélé, Roukiatou
Sow, Samba
Minsoko, Pamela Cathérine Angoissa
Agnandji, Selidji Todagbe
Lell, Bertrand
Ismail, Mamudo R.
Carrilho, Carla
Ordi i Majà, Jaume
Menéndez, Clara
Bassat Orellana, Quique
Munguambe, Khátia
Keywords: Religió
Autòpsia
Religion
Autopsy
Issue Date: 22-Nov-2016
Publisher: Public Library of Science (PLoS)
Abstract: Background The minimally invasive autopsy (MIA) is being investigated as an alternative to complete diagnostic autopsies for cause of death (CoD) investigation. Before potential implementation of the MIA in settings where post-mortem procedures are unusual, a thorough assessment of its feasibility and acceptability is essential. Methods and Findings We conducted a socio-behavioural study at the community level to understand local attitudes and perceptions related to death and the hypothetical feasibility and acceptability of conducting MIAs in six distinct settings in Gabon, Kenya, Mali, Mozambique, and Pakistan. A total of 504 interviews (135 key informants, 175 health providers [including formal health professionals and traditional or informal health providers], and 194 relatives of deceased people) were conducted. The constructs “willingness to know the CoD” and “hypothetical acceptability of MIAs” were quantified and analysed using the framework analysis approach to compare the occurrence of themes related to acceptability across participants. Overall, 75% (379/504) of the participants would be willing to know the CoD of a relative. The overall hypothetical acceptability of MIA on a relative was 73% (366/504). The idea of the MIA was acceptable because of its perceived simplicity and rapidity and particularly for not “mutilating” the body. Further, MIAs were believed to help prevent infectious diseases, address hereditary diseases, clarify the CoD, and avoid witchcraft accusations and conflicts within families. The main concerns regarding the procedure included the potential breach of confidentiality on the CoD, the misperception of organ removal, and the incompatibility with some religious beliefs. Formal health professionals were concerned about possible contradictions between the MIA findings and the clinical pre-mortem diagnoses. Acceptability of the MIA was equally high among Christian and Islamic communities. However, in the two predominantly Muslim countries, MIA acceptability was higher in Mali than in Pakistan. While the results of the study are encouraging for the potential use of the MIA for CoD investigation in low-income settings, they remain hypothetical, with a need for confirmation with real-life MIA implementation and in populations beyond Health and Demographic Surveillance System areas. Conclusions This study showed a high level of interest in knowing the CoD of a relative and a high hypothetical acceptability of MIAs as a tool for CoD investigation across six distinct settings. These findings anticipate potential barriers and facilitators, both at the health facility and community level, essential for local tailoring of recommendations for future MIA implementation.
Note: Reproducció del document publicat a:http://dx.doi.org/10.1371/journal.pmed.1002172
It is part of: PLoS Medicine, 2016, vol. 13, num. 11, p. e1002172
Related resource: http://dx.doi.org/10.1371/journal.pmed.1002172
URI: http://hdl.handle.net/2445/104546
ISSN: 1549-1277
Appears in Collections:Articles publicats en revistes (ISGlobal)
Articles publicats en revistes (Fonaments Clínics)

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