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Title: | Social Representation of Dementia: An Analysis of 5,792 Consecutive Cases Evaluated in a Memory Clinic |
Author: | Cañabate González, Mª del Pilar Martínez, Gabriel Rosende-Roca, Maitée Moreno, Mariola Preckler, Silvia Valero, Sergi Sotolongo-Grau, Oscar Hernández, Isabel Alegret, Montserrat Ortega, Gemma Espinosa Cardiel, Ana Mauleón, Ana Vargas, Liliana Rodríguez-Gómez, Octavio Abdelnour, Carla Sánchez, Domingo Martín, Elvira Ruiz, Agustín Tárraga, Lluís Boada, Mercè Fundació ACE |
Keywords: | Malaltia d'Alzheimer Demència senil Percepció social Cuidadors Etnografia Alzheimer's disease Senile dementia Social perception Caregivers Ethnography |
Issue Date: | 23-Jun-2017 |
Publisher: | IOS Press |
Abstract: | Abstract. Background: Different interpretations of cognitive impairment and dementia due to differences in health structures, such as cultural differences could affect the diagnosis and treatment of the condition. it is reasonable to expect that the social and family impact of the disease and coping strategies will differ among societies. Objective: The general aim of this study is to understand the social representations of dementia, its associated practices, and the effects they imply. Methods: People diagnosed with clinical dementia and their families were assessed from 2005 to 2015 in the memory clinic of the Fundacio ́ ACE, Institut Catala` de Neurocie`ncies Aplicades in Barcelona, Spain. Results: 9,898 people were examined and 5,792 were diagnosed with dementia. For those with a caregiver (71%), the decision-making fell on the person with dementia in 16.2% of the cases; and for those without a caregiver, in 26.4% of the cases the family did not perceive the deficits as a disease, which led to multiple risk situations (74.6%). Conclusions: The recognition of dementia as part of aging is common among families. Consequently, risk situations may arise and diagnosis and access to treatment may be delayed. The incorporation of a social appraisal to the diagnostic process is a necessity to evaluate these situations. |
Note: | Reproducció del document publicat a: https://doi.org/10.3233/JAD-161119 |
It is part of: | Journal of Alzheimer's Disease, 2017, vol. 58, num. 4, p. 1099-1108 |
URI: | http://hdl.handle.net/2445/175769 |
Related resource: | https://doi.org/10.3233/JAD-161119 |
ISSN: | 1387-2877 |
Appears in Collections: | Articles publicats en revistes (Antropologia Social) |
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