Please use this identifier to cite or link to this item: http://hdl.handle.net/2445/68848
Title: Factors predicting distress among parents/caregivers of children with neurological disease and home enteral nutrition
Author: Pedrón-Giner, C.
Calderón Garrido, Caterina
Martinez-Costa, C.
Borraz, S.
Gómez-López, L.
Keywords: Infants discapacitats
Cuidadors
Ansietat
Depressió psíquica
Children with disabilities
Caregivers
Anxiety
Mental depression
Issue Date: 28-Mar-2013
Publisher: John Wiley & Sons
Abstract: Abstract Background & aims Caregivers of children with chronic diseases included in a home enteral nutrition (HEN) programme are at risk of experiencing a feeling of burden, high level of anxiety and psychological distress. The aims of this study were: first, to examine the prevalence of symptoms of anxiety-depression in caregivers of children with neurological diseases requiring HEN by gastrostomy tube (GT); second, to compare the characteristics of caregivers with high or low risk of exhibiting symptoms of anxiety-depression; and third, to investigate possible associations to child disease severity and nutrition support mode. Methods A cross-sectional observational study was performed in 58 caregivers of children (31 boys, aged 0.3-18 years) with neurological diseases and GT feeding. The characteristics of caregivers with high or low risk of presenting symptoms of anxiety-depression were compared regarding the following variables: socio-demographic characteristics, the primary caregiver's intrapsychic factors, anthropometric parameters of the child, length of HEN, type of nutrients delivered by GT and infusion regime. Results All primary caregivers were mothers. Fifty-three per cent of them showed high risk of exhibiting symptoms of anxiety-depression. Mothers with high or low risk of presenting symptoms of anxiety-depression were comparable in age and family socio-economic status. They were also similar in terms of age, anthropometric conditions and length of HEN in their children. No differences were found between the two groups of mothers according to the level of the child's motor function impairment, type of nutrients delivered by GT and infusion regime. Higher levels of psychological distress and perception of burden overload were found in mothers with high risk of exhibiting symptoms of anxiety-depression. Conclusions This study found a high prevalence of symptoms of anxiety-depression, perception of burden overload and psychological distress in caregivers of children with HEN. Thus, greater practical and emotional support is required for these families.
Note: Versió postprint del document publicat a: http://dx.doi.org/10.1111/cch.12038
It is part of: Child Care Health and Development, 2013, vol. 40, num. 3, p. 389-397
Related resource: http://dx.doi.org/10.1111/cch.12038
URI: http://hdl.handle.net/2445/68848
ISSN: 0305-1862
Appears in Collections:Articles publicats en revistes (Psicologia Clínica i Psicobiologia)

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