Definition, aims, and implementation of GA2 LEN/HAEi Angioedema Centers of Reference and Excellence

Maurer, Marcus; Aberer, Werner; Agondi, Rosana; Al‐Ahmad, Mona; Al‐Nesf, Maryam Ali; Ansotegui, Ignacio; Arnaout, Rand; Arruda, Luisa Karla; Asero, Riccardo; Aygören‐Pürsün, Emel; Banerji, Aleena; Serpa, Faradiba S.; Parisi, Claudio A. S.; Peter, Jonathan Grant; Pfützner, Wolfgang; Ben‐Shoshan, Moshe; Popov, Todor; Röckmann‐Helmbach, Heike; Prior, Nieves; Ramon, German D.; Reich, Adam; Boccon‐Gibod, Isabelle; Reshef, Avner; Serra‐Baldrich, Esther; Rudenko, Michael; Salman, Andaç; Sánchez Borges, Mario; Schmid‐Grendelmeier, Peter; Sheikh, Farrukh R.; Bauer, Andrea; Smith, William; Soria, Angèle; Ye, Young‐Min; Staubach, Petra; Steiner, Urs C.; Stobiecki, Marcin; Craig, Timothy; Sussman, Gordon; Varga, Lilian; Tagka, Anna; Thomsen, Simon Francis; Treudler, Regina; Valle, Solange; Zalewska‐Janowska, Anna; Vázquez, Daniel O.; Wagner, Nicola; Wang, Liangchun; Weber‐Chrysochoou, Christina; Zanichelli, Andrea; Costa, Célia; Zhao, Zuotao; Berardi, Alejandro; Zhi, Yuxiang; Zuberbier, Torsten; Zwiener, Ricardo D.; Gompels, Mark; Castaldo, Anthony; Bork, Konrad; Bernstein, Jonathan A.; Betschel, Stephen; Bindslev‐Jensen, Carsten; Bizjak, Mojca; Bouillet, Laurence; Boysen, Henrik Balle; Brodszki, Nicholas; Broesby‐Olsen, Sigurd; Ensina, Luis Felipe; Busse, Paula; Buttgereit, Thomas; Bygum, Anette; Kessel, Aharon; Caballero, Teresa; Criado, Paulo Ricardo; Campos, Régis A.; Cancian, Mauro; Cherrez Ojeda, Ivan; Cohn, Danny M.; Ertaş, Ragıp; Criado, Roberta F.; Csuka, Dorottya; Dissemond, Joachim; Du‐Thanh, Aurélie; Fabiani, José E.; Katelaris, Constance; Fantini, Claudio; Farkas, Henriette; Ferrucci, Silvia Mariel; Figueras Nart, Ignasi; Fili, Natalia L.; Nasr, Iman; Fomina, Daria; Gonçalo, Margarida; Fukunaga, Atsushi; Gelincik, Asli; Giménez Arnau, Ana; Godse, Kiran; Gotua, Maia; Gower, Richard; Grumach, Anete S.; Guidos Fogelbach, Guillermo; Kumaran, M. Sendhil; Hide, Michihiro; Ilina, Natalia; Inomata, Naoko; Ritchie, Bruce; Jakob, Thilo; Kleinheinz, Andreas; Josviack, Dario O.; Kang, Hye‐Ryun; Kaplan, Allen; Kasperska‐Zając, Alicja; Larco Sousa, José Ignacio; Kocatürk, Emek; Košnik, Mitja; Krasowska, Dorota; Kulthanan, Kanokvalai; Longhurst, Hilary J.; Riedl, Marc A.; Lumry, William; MacGinnitie, Andrew; Magerl, Markus; Makris, Michael P.; Malbrán, Alejandro; Doorn, Martijn; Marsland, Alexander; Nicolay, Jan; Martinez Saguer, Inmaculada; Medina, Iris V.; Meshkova, Raisa; Metz, Martin; Nishigori, Chikako; Ohsawa, Isao; Özyurt, Kemal; Papadopoulos, Nikolaos G.

Please use this identifier to cite or link to this item: http://hdl.handle.net/2445/174368

Title:	Definition, aims, and implementation of GA2 LEN/HAEi Angioedema Centers of Reference and Excellence
Author:	Maurer, Marcus Aberer, Werner Agondi, Rosana Al‐Ahmad, Mona Al‐Nesf, Maryam Ali Ansotegui, Ignacio Arnaout, Rand Arruda, Luisa Karla Asero, Riccardo Aygören‐Pürsün, Emel Banerji, Aleena Serpa, Faradiba S. Parisi, Claudio A. S. Peter, Jonathan Grant Pfützner, Wolfgang Ben‐Shoshan, Moshe Popov, Todor Röckmann‐Helmbach, Heike Prior, Nieves Ramon, German D. Reich, Adam Boccon‐Gibod, Isabelle Reshef, Avner Serra‐Baldrich, Esther Rudenko, Michael Salman, Andaç Sánchez Borges, Mario Schmid‐Grendelmeier, Peter Sheikh, Farrukh R. Bauer, Andrea Smith, William Soria, Angèle Ye, Young‐Min Staubach, Petra Steiner, Urs C. Stobiecki, Marcin Craig, Timothy Sussman, Gordon Varga, Lilian Tagka, Anna Thomsen, Simon Francis Treudler, Regina Valle, Solange Zalewska‐Janowska, Anna Vázquez, Daniel O. Wagner, Nicola Wang, Liangchun Weber‐Chrysochoou, Christina Zanichelli, Andrea Costa, Célia Zhao, Zuotao Berardi, Alejandro Zhi, Yuxiang Zuberbier, Torsten Zwiener, Ricardo D. Gompels, Mark Castaldo, Anthony Bork, Konrad Bernstein, Jonathan A. Betschel, Stephen Bindslev‐Jensen, Carsten Bizjak, Mojca Bouillet, Laurence Boysen, Henrik Balle Brodszki, Nicholas Broesby‐Olsen, Sigurd Ensina, Luis Felipe Busse, Paula Buttgereit, Thomas Bygum, Anette Kessel, Aharon Caballero, Teresa Criado, Paulo Ricardo Campos, Régis A. Cancian, Mauro Cherrez Ojeda, Ivan Cohn, Danny M. Ertaş, Ragıp Criado, Roberta F. Csuka, Dorottya Dissemond, Joachim Du‐Thanh, Aurélie Fabiani, José E. Katelaris, Constance Fantini, Claudio Farkas, Henriette Ferrucci, Silvia Mariel Figueras Nart, Ignasi Fili, Natalia L. Nasr, Iman Fomina, Daria Gonçalo, Margarida Fukunaga, Atsushi Gelincik, Asli Giménez Arnau, Ana Godse, Kiran Gotua, Maia Gower, Richard Grumach, Anete S. Guidos Fogelbach, Guillermo Kumaran, M. Sendhil Hide, Michihiro Ilina, Natalia Inomata, Naoko Ritchie, Bruce Jakob, Thilo Kleinheinz, Andreas Josviack, Dario O. Kang, Hye‐Ryun Kaplan, Allen Kasperska‐Zając, Alicja Larco Sousa, José Ignacio Kocatürk, Emek Košnik, Mitja Krasowska, Dorota Kulthanan, Kanokvalai Longhurst, Hilary J. Riedl, Marc A. Lumry, William MacGinnitie, Andrew Magerl, Markus Makris, Michael P. Malbrán, Alejandro Doorn, Martijn Marsland, Alexander Nicolay, Jan Martinez Saguer, Inmaculada Medina, Iris V. Meshkova, Raisa Metz, Martin Nishigori, Chikako Ohsawa, Isao Özyurt, Kemal Papadopoulos, Nikolaos G.
Keywords:	Edema angioneuròtic Urticària Angioneurotic edema Urticaria
Issue Date:	27-Apr-2020
Publisher:	European Academy of Allergy and Clinical Immunology; John Wiley & Sons Ltd.
Abstract:	This document summarizes the aims of GA2 LEN/HAEi Angioedema Centers of Reference and Excellence (ACAREs) and elaborates the requirements that ACAREs must fulfill to become certified. It also provides (see Appendix S1) background information on GA2LEN and HAEi, including HAEi member organizations and regional patient advocates, on why we need an Angioedema Center of Reference and Excellence (ACARE) program and network, and on the accreditation and certification process, governance and funding, and on the interaction with other GA2LEN networks of centers of reference and excellence. The protocols, aims, requirements, and provisions related to becoming a certified CARE are based on (a) the experience of the GA2LEN UCARE network and (b) input from angioedema patients, general practitioners, and angioedema specialists.
Note:	Reproducció del document publicat a: https://doi.org/10.1111/all.14293
It is part of:	Allergy, 2020, vol. 75, num. 8, p. 2115-2123
URI:	http://hdl.handle.net/2445/174368
Related resource:	https://doi.org/10.1111/all.14293
Appears in Collections:	Articles publicats en revistes (Institut d'lnvestigació Biomèdica de Bellvitge (IDIBELL))

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