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http://hdl.handle.net/2445/177316
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DC Field | Value | Language |
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dc.contributor.author | Meca Lallana, José E. | - |
dc.contributor.author | Prefasi, Daniel | - |
dc.contributor.author | Pérez-Miralles, Francisco | - |
dc.contributor.author | Forero, Lucía | - |
dc.contributor.author | Sepúlveda, María | - |
dc.contributor.author | Calles, Carmen | - |
dc.contributor.author | Martínez-Ginés, María L | - |
dc.contributor.author | González-suárez, Inés | - |
dc.contributor.author | Boyero, Sabas | - |
dc.contributor.author | Romero-pinel, Lucía | - |
dc.contributor.author | Sempere, Ángel P | - |
dc.contributor.author | Meca Lallana, Virginia | - |
dc.contributor.author | Querol, Luis | - |
dc.contributor.author | Costa Frossard, Lucienne | - |
dc.contributor.author | De Castro-trapiello, Hugo | - |
dc.contributor.author | Canal, Neus | - |
dc.contributor.author | Maurino, Jorge | - |
dc.date.accessioned | 2021-05-14T09:06:39Z | - |
dc.date.available | 2021-05-14T09:06:39Z | - |
dc.date.issued | 2021-04-01 | - |
dc.identifier.uri | http://hdl.handle.net/2445/177316 | - |
dc.description.abstract | Background: Perception of stigma was associated with low self-esteem, psychological problems, and decreased health-seeking behavior among patients with different neurological disorders. The purpose of this study was to assess stigmatization and its impact in patients with neuromyelitis optica spectrum disorder (NMOSD). Methods: A non-interventional study was conducted at thirteen neuroimmunology clinics in Spain. Patients with a diagnosis of NMOSD (2015 Wingerchuk criteria) were included. The 8-item Stigma Scale for Chronic Illness (SSCI-8), the Expanded Disability Status Scale (EDSS), the 29-item Multiple Sclerosis Impact Scale (MSIS-29), the Beck Depression Inventory-Fast Screen (BDI-FS), the MOS Pain Effects Scale (MOS-PES) and the Fatigue Impact Scale for Daily Use (D-FIS) were used to assess the perception of stigma, disability, quality of life, mood, pain, and fatigue, respectively. Associations between outcome measures were analyzed using Spearman's rank correlation. Results: Seventy-one patients were studied (mean age: 47.4 years ± 14.9, 81.7% female, mean time since disease onset: 9.9 years ± 8.1). The median EDSS score was 3.0 (interquartile range 1.5, 4.5). Stigma prevalence was 61.4% (n=43). Thirty-one patients (43.6%) had depression. The SSCI-8 score showed a significant correlation with both physical (rho=0.576, p<0.0001) and psychological (rho=0.608, p<0.0001) MSIS-29 scales scores, EDSS score (rho=0.349, p=0.0033), BDI-FS score (rho= 0.613, p<0.0001), MOS-PES score (rho= 0.457, p<0.0001), and D-FIS score (rho=0.556, p<0.0001). Conclusion: Stigma is a common phenomenon affecting over 6 out of 10 patients with NMOSD. Understanding stigma may be useful to develop educational strategies improving NMOSD knowledge. | - |
dc.format.extent | 7 p. | - |
dc.format.mimetype | application/pdf | - |
dc.language.iso | eng | - |
dc.publisher | Informa UK Limited | - |
dc.relation.isformatof | Reproducció del document publicat a: https://doi.org/10.2147/PPA.S305707 | - |
dc.relation.ispartof | Patient Preference and Adherence, 2021, vol. 15, p. 713-719 | - |
dc.relation.uri | https://doi.org/10.2147/PPA.S305707 | - |
dc.rights | cc by-nc (c) Meca-lallana, Jose E. et al., 2021 | - |
dc.rights.uri | http://creativecommons.org/licenses/by-nc/3.0/es/ | * |
dc.source | Articles publicats en revistes (Institut d'lnvestigació Biomèdica de Bellvitge (IDIBELL)) | - |
dc.subject.classification | Malalties del nervi òptic | - |
dc.subject.classification | Malalties del sistema nerviós central | - |
dc.subject.other | Optic nerve diseases | - |
dc.subject.other | Central nervous system diseases | - |
dc.title | Perception of Stigma in Patients with Neuromyelitis Optica Spectrum Disorder | - |
dc.type | info:eu-repo/semantics/article | - |
dc.date.updated | 2021-05-13T13:09:05Z | - |
dc.rights.accessRights | info:eu-repo/semantics/openAccess | - |
dc.identifier.pmid | 33880015 | - |
Appears in Collections: | Articles publicats en revistes (Institut d'lnvestigació Biomèdica de Bellvitge (IDIBELL)) |
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File | Description | Size | Format | |
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ppa-305707-perception-of-stigma-in-patients-with-neuromyelitis-optica-s.pdf | 363.94 kB | Adobe PDF | View/Open |
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