Please use this identifier to cite or link to this item: https://hdl.handle.net/2445/222396
Title: Navigating disruption in the PID landscape: embracing opportunities and anticipating threats in the next ten years
Author: Mamede, Lúcia
Cantenys Sabà, Roser
Coillie, Samya van
Prévot, Johan
Sánchez Ramón, Silvia
Poli, Cecilia
Barasa, Anne
Schuller, Björn W.
Hendel, Ayal
Garcelón, Nicolás
Boersma, Cornelis
Lee, Pamela
Booth, Claire
Notarangelo, Luigi D.
Drabwell, Jose
Rider, Nicholas L.
Staal, Frank J. T.
Burns, Siobhan O.
Hagen, Martin van
Pergent, Martine
Rivière, Jacques G.
Mahlaoui, Nizar
Keywords: Malalties immunitàries
Medicina personalitzada
Immunologic diseases
Personalized medicine
Issue Date: 17-Jun-2025
Publisher: Frontiers Media SA
Abstract: Introduction The International Patient Organisation for Primary Immunodeficiencies (IPOPI) held its third edition of the Global Multi-Stakeholders' Summit, gathering key primary immunodeficiencies (PID) stakeholders and experts to discuss and foment global collaboration.Methods This edition focused on the impact of genomic medicine in PID treatment, the role of digital health, including artificial intelligence, in PID care, and how to anticipate and minimise risks to ensure optimal patient access to care.Results These discussions aimed to examine current hurdles and brainstorm feasible solutions and priorities for the PID community in these areas in the next ten years.Discussion These discussions led to recommendations for comprehensive approaches to care and access to treatment for PID patients, suggesting actions that will bring the community closer to treatments based on real-world evidence and adjusted to patient's needs. To accomplish this, collaboration between academia, industry, regulatory authorities, and patients is crucial.
Note: Reproducció del document publicat a: https://doi.org/10.3389/fimmu.2025.1596971
It is part of: Frontiers in Immunology, 2025, vol. 16
URI: https://hdl.handle.net/2445/222396
Related resource: https://doi.org/10.3389/fimmu.2025.1596971
Appears in Collections:Articles publicats en revistes (Institut d'lnvestigació Biomèdica de Bellvitge (IDIBELL))

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