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Title: Family burden related to clinical and functional variables of people with intellectual disability with and without a mental disorder
Author: Irazábal Giménez, Marcia
Marsà, Ferran
García, Mercedes
Gutiérrez-Recacha, Pedro
Martorell, Almudena
Salvador Carulla, Luis
Ochoa Güerre, Susana
Keywords: Discapacitats mentals
People with mental disabilities
Pathological psychology
Issue Date: 2012
Publisher: Elsevier
Abstract: Few studies have been found that to assess the factors that explain higher levels of familyburden in adults with intellectualdisability (ID) and intellectualdisability and mental disorders (ID-MD). The aims of this study were to assess familyburden in people with ID and ID-MD and to determine which sociodemographic, clinical and functionaldisabilityvariables account for familyburden. The sample is composed of pairs of 203 participants with disability and their caregivers, of which 33.5% are caregivers of people with ID and 66.5% of ID-MD. Assessments were performed using scales of clinical and functionaldisability as the following instruments: Weschler Adult Intelligence Scale-III (WAIS-III), Inventory for Client and Agency Planning (ICAP), Psychiatric Assessment Schedule for Adults with Development Disability (PAS-ADD checklist), Disability Assessment Schedule of the World Health Organization (WHO-DAS-II) and familyburden (Subjective and Objective FamilyBurden Inventory - SOFBI/ECFOS-II). People with ID-MD presented higher levels of functionaldisability than those with ID only. Higher levels of familyburden were related to higher functionaldisability in all the areas (p < 0.006-0.001), lower intelligence quotient (p < 0.001), diagnosis of ID-MD (p < 0.001) and presence of organic, affective, psychotic and behavioral disorders (p < 0.001). Stepwise multiple regression showed that behavioral problems, affective and psychotic disorder, disability in participation in society, disability in personal care and presence of ID-MD explained more than 61% of the variance in familyburden. An integrated approach using effective multidimensional interventions is essential for both people with ID and ID-MD and their caregivers in order to reduce familyburden.
Note: Versió preprint del document publicat a:
Research in Developmental Disabilities, 2012, vol. 33, núm. 3, p. 796-803
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ISSN: 0891-4222
Appears in Collections:Articles publicats en revistes (Treball Social)

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