# name
Challenges of inclusive schooling for children and adolescents with congenital heart disease: A phenomenological study

# metadata.dc.description.abstract[].value
Educational attainment is closely associated with health. The
objective is to explore the extent to which children and
adolescents with congenital heart disease (CHD) are afforded
the same educational and socialization opportunities as their
healthy peers. We used a qualitative phenomenological design
with convenience sampling. Data gathered 27 semistructured
interviews: children with CHD (n = 9), parents (n = 10), and
professionals (n = 8) in Catalonia, Spain. Interview transcripts
were coded using the constant comparative method and
analyzed using ATLAS.ti software. The analysis revealed three
themes describing the experience of schooling for children
with CHD: (1) Empowering and enabling a child with CHD to
achieve academically and engage socially is a challenge for
parents; (2) Teachers lack the resources and specific skills
necessary to meet the diversity needs of children with CHD;
(3) Parents and teachers have low expectations regarding the
academic achievement of a child with CHD. Further application
of the constant comparison method yielded a core theme:
(4) Children with CHD experience exclusion from peer group
social learning activities. Further efforts are needed for more
effective collaboration and coordination between educational
and health professionals to provide support for teachers and
families and enable children to be better integrated within
schools.

# metadata.dc.source[].value
Articles publicats en revistes (Didàctica i Organització Educativa)

# metadata.dc.title[].value
Challenges of inclusive schooling for children and adolescents with congenital heart disease: A phenomenological study