# name
European expert network on rare communicable diseases and other rare diseases linked to mobility and globalisation focused on ealth care provision (EURaDMoG): a feasibility study.

# metadata.dc.description.abstract[].value
INTRODUCTION NlmCategory: BACKGROUND content: In the current mobility and globalization context, there is a growing need to identify potential changes on the pattern of diseases in the European Union (EU)/European Economic Area (EEA)
                and provide accurate diagnosis and treatment for the population.
                The pattern of rare communicable diseases that can affect people
                returning to EU/EEA from travel abroad, visiting EU/EEA or
                establishing in the EU/EEA is of special relevance. The
                objective of this manuscript is to give an overview about the
                EURaDMoG study and discuss the feasibility of establishing a
                European network on rare communicable diseases and other rare
                conditions linked to mobility and globalization. - Label:
                METHODS NlmCategory: METHODS content: We undertook a three-steps
                process where we first conducted a narrative review to estimate
                the prevalence and incidence and to list rare communicable and
                non-communicable diseases linked to mobility and globalization
                in the EU/EEA; second, we organized an international
                consultation workshop with experts in the diseases previously
                selected; and finally, the feasibility study analysed how
                successful a European expert network on rare diseases linked to
                mobility and globalization focused on health care provision
                would be, accounting for different operational and also
                sustainability criteria. - Label: RESULTS NlmCategory: RESULTS
                content: "First, considering the areas or topics that the
                network should cover, it was concluded that communicable and
                non-communicable rare diseases linked to mobility and
                globalization should be differentiated. Second, since all
                non-communicable rare diseases linked to mobility and
                globalization identified are already covered by different
                European Reference Networks (ERNs), there is no need for them to
                be included in a new European network. Three scenarios were
                considered for establishing a potential European network for
                rare communicable diseases linked to Mobility and Globalisation
                with a focus on Health Care provision: 1) To maintain the
                current situation \"Status Quo\" scenario; 2) to create a
                specific European expert network (EEN) on rare communicable
                diseases linked to mobility and globalisation; 3) to develop a
                new ERN on communicable rare diseases linked to mobility and
                globalisation." - Label: CONCLUSIONS NlmCategory: CONCLUSIONS
                content: Since the focus is the provision of health care, an ERN
                could have the potential to better boost the quality of care
                being facilitated by technological tools and online platforms
                that permit the safe and ethically acceptable exchange of data.
                However, this potential new network should not eclipse current
                existing networks and they should be complementary.

# metadata.dc.relation.ispartof[].value
Orphanet Journal of Rare Diseases, 2020, vol. 15

# metadata.dc.rights[].value
cc by (c) Requena Méndez, Ana et al, 2020

# metadata.dc.source[].value
Articles publicats en revistes (ISGlobal)

# metadata.dc.title[].value
European expert network on rare communicable diseases and other rare diseases linked to mobility and globalisation focused on ealth care provision (EURaDMoG): a feasibility study.