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Evaluating quality of life in pediatric palliative care: a cross-sectional analysis of children’s and parents’ perspectives

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The patient’s perspective is an essential component of understanding the individual experience of suffering in children with palliative needs, but it is a perspective that is often overlooked. The aim of this study was to compare the perception of quality of life (QoL) of children with life-limiting and life-threatening conditions expressed by the children themselves and their parents. Through a cross-sectional study, the responses of 44 parent–child dyads were obtained and the analysis was performed with the statistics based on Student’s t distribution and non-parametric tests

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Articles publicats en revistes  (Econometria, Estadística i Economia Aplicada)

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Evaluating quality of life in pediatric palliative care: a cross-sectional analysis of children’s and parents’ perspectives