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http://hdl.handle.net/2445/106865
Title: | Kinship and cohabitation in relation to caregiver burden in the context of Alzheimer's disease: a 24-month longitudinal study |
Author: | Viñas-Diez, Vanesa Turró-Garriga, Oriol Portellano Ortiz, Cristina Gascón-Bayarri, Jordi Reñé Ramírez, Ramon Garre Olmo, Josep Conde Sala, Josep Lluís |
Keywords: | Malaltia d'Alzheimer Cura dels malalts Relacions familiars Alzheimer's disease Care of the sick Family relationships |
Issue Date: | 23-Jan-2017 |
Publisher: | John Wiley & Sons |
Abstract: | Objectives: The aims of the study were to identify the clinical characteristics of three groups of caregivers: spouses, live-in adult-child or non-live-in adult-child, and their relation to the degree of perceived burden (Caregiver Burden Interview). Methods: The sample comprised 275 Alzheimer's disease (AD) primary caregivers, with a follow-up of 24 months. Cognitive, functional and behavioural characteristics were evaluated in persons with AD (PwD), while socio-demographic data, use of socio-medical resources, physical and mental health, and self-perceived burden were assessed in caregivers. Generalized estimating equations (GEE) were used for longitudinal data analysis. Results: Spouse caregivers were 45.0% men, sole caregivers (> 80%), used few external resources, and had worse physical health. The number of female adult-child caregivers was higher (>75%). The live-in adult-child group, compared with the non-live-in adult-child group, were less likely to be married, had a lower level of education, were more commonly the sole caregiver, and used fewer external resources. The greatest burden was observed in live-in adult-child caregivers, and the lowest in the non-live-in adult-child group, with no significant variation in the follow-up for both groups. Spouses had an intermediate level of perceived burden, which rose significantly during follow-up (p <0.001). Conclusions: Kinship and cohabitation with the PwD were associated with different scores and evolution of the burden, with an increase in the follow-up of the spouses, and with more or less burden, depending on cohabitation, in the adult-child groups. Interventions to reduce the level of burden on caregivers should consider these differences. |
Note: | Versió postprint del document publicat a: https://doi.org/10.1002/gps.4656 |
It is part of: | International Journal of Geriatric Psychiatry, 2017, p. 1-26 |
URI: | http://hdl.handle.net/2445/106865 |
Related resource: | https://doi.org/10.1002/gps.4656 |
ISSN: | 0885-6230 |
Appears in Collections: | Articles publicats en revistes (Cognició, Desenvolupament i Psicologia de l'Educació) Articles publicats en revistes (Institut d'lnvestigació Biomèdica de Bellvitge (IDIBELL)) |
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