Fitxers
Tipus de document
Objecte de conferènciaData de publicació
Llicència de publicació
Si us plau utilitzeu sempre aquest identificador per citar o enllaçar aquest document: https://hdl.handle.net/2445/232005
Ethical support in citizen science for health
Títol de la revista
Director/Tutor
Contribució addicional
ISSN de la revista
Títol del volum
Resum
Citizen science for health (CS4H) increasingly involves citizens as active contributors and more often as researchers themselves. It raises ethical challenges that are not well supported by existing ethics review and support systems. This paper explores how CS-community members view these challenges and what kinds of ethics support they consider most useful. We organised a 30‑minute ‘Solution Room’ session at the international CS4H-conference, bringing together participants with diverse experiences. Using a structured, multi‑round process, participants generated ideas, organised them in an Impact–Effort-matrix, prioritised promising directions, and jointly reflected on possible forms of ethics support. Participants identified a wide range of possible solutions, focusing on practical and feasible forms of ethics support, such as involving citizens in ethics review boards, creating multiprofessional or modular review structures, and offering tools, knowledge and training. Other proposals addressed broader system level issues, including recognition of CS4H, equity‑based approaches, and coordination beyond individual institutions. The findings suggest that improving ethical practice in CS4H requires ethics support systems that are proactive, inclusive, and adaptable.
Recurs relacionat
Matèries
Matèries (anglès)
Citació
Citació
BEVELANDER, Kirsten, et al. Ethical support in citizen science for health. Proceedings of Science. 2026. Vol. 524. ISSN 1824-8039. [consulted: 14 of October of 2026]. Available at: https://hdl.handle.net/2445/232005