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Impacto de un programa educativo para el paciente con síndrome de Cushing: Estudio Multicéntrico
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[spa] INTRODUCCIÓN: El síndrome de Cushing (SC) representa una de esas enfermedades endocrinas raras, está caracterizada por una hipersecreción de cortisol; está causada por un tumor en la hipófisis (enfermedad de Cushing), o más raramente por un tumor adrenal o ectópico. La principal causa de morbilidad y mortalidad en el SC es la enfermedad cardiovascular, incluso si los pacientes han sido tratados de manera eficaz (es decir, se ha controlado el hipercortisolismo). A pesar de las múltiples complicaciones que pueden sufrir los pacientes con SC y de la presencia de numerosos factores de riesgo cardiovascular (obesidad central, diabetes, cardiopatía isquémica, hipertensión, dislipemia, etc.) potencialmente peligrosos, no existen en la actualidad programas educativos que den respuesta a este déficit formativo. Para el paciente con SC no existe hasta ahora una atención integral que permita afrontar la complejidad de esta enfermedad y conseguir una mejora de la Calidad de Vida, la disminución en la morbi-mortalidad, el aumento del confort, bienestar y autonomía en el autocuidado Dicho aspecto permite que enfermería se situé en primera línea de actuación frente a la educación en este grupo de pacientes, a través de la elaboración y el fomento de instrumentos educativos específicos que mejoren la Calidad de vida de estos pacientes. OBJETIVOS GENERALES: Evaluar la efectividad de las sesiones educativas para los pacientes con Síndrome de Cushing operados y con seguimiento ambulatorio en el HSCSP y Hospital Clínico de Barcelona, en términos de calidad de vida, indicadores de evaluación clínica, nivel de dolor y actividad física, patrones de descanso y consumo de recursos sanitarios (seguimiento realizado entre 2010 y 2011
[eng] INTRODUCTION: Cushing's syndrome (CS) is one of those rare endocrine diseases, is characterized by hypersecretion of cortisol, is caused by a pituitary tumor (Cushing's disease), or more rarely by an adrenal tumor or ectopic. The main cause of morbidity and mortality in the SC is cardiovascular disease, even if patients have been treated effectively (ie, has controlled the hypercortisolism). Despite the many complications that patients may suffer SC and the presence of several cardiovascular risk factors (central obesity, diabetes, ischemic heart disease, hypertension, dyslipidemia, etc.). Potentially dangerous, there are currently no educational programs respond to this educational deficit. For the patient with SC so far no comprehensive care that will address the complexity of this disease and achieve an improved quality of life, decreased morbidity and mortality, increased comfort, convenience and independence in self-care Said aspect allows nursing site frontline action against education in this group of patients, through the development and promotion of specific educational tools that improve the quality of life of these patients. OBJECTIVES: To assess the effectiveness of the educational sessions for patients with Cushing's syndrome and operated outpatient follow the HSCSP and Hospital Clinic of Barcelona, in terms of quality of life, clinical evaluation indicators, level of pain and physical activity, patterns of rest and use of health resources (monitoring conducted between 2010 and 2011)
[eng] INTRODUCTION: Cushing's syndrome (CS) is one of those rare endocrine diseases, is characterized by hypersecretion of cortisol, is caused by a pituitary tumor (Cushing's disease), or more rarely by an adrenal tumor or ectopic. The main cause of morbidity and mortality in the SC is cardiovascular disease, even if patients have been treated effectively (ie, has controlled the hypercortisolism). Despite the many complications that patients may suffer SC and the presence of several cardiovascular risk factors (central obesity, diabetes, ischemic heart disease, hypertension, dyslipidemia, etc.). Potentially dangerous, there are currently no educational programs respond to this educational deficit. For the patient with SC so far no comprehensive care that will address the complexity of this disease and achieve an improved quality of life, decreased morbidity and mortality, increased comfort, convenience and independence in self-care Said aspect allows nursing site frontline action against education in this group of patients, through the development and promotion of specific educational tools that improve the quality of life of these patients. OBJECTIVES: To assess the effectiveness of the educational sessions for patients with Cushing's syndrome and operated outpatient follow the HSCSP and Hospital Clinic of Barcelona, in terms of quality of life, clinical evaluation indicators, level of pain and physical activity, patterns of rest and use of health resources (monitoring conducted between 2010 and 2011)
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MARTÍNEZ MOMBLÁN, Ma. antonia. Impacto de un programa educativo para el paciente con síndrome de Cushing: Estudio Multicéntrico. [consulta: 15 de gener de 2026]. [Disponible a: https://hdl.handle.net/2445/43464]