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2024-11-01

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cc-by (c) Armadans, I. et al., 2024
Si us plau utilitzeu sempre aquest identificador per citar o enllaçar aquest document: https://hdl.handle.net/2445/219365

Effectiveness of a psychoeducational intervention on myositis patients' quality of life and well-being: a randomized controlled trial

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Recurs relacionat

https://doi.org/10.1186/s13023-024-03426-0

Resum

Background: Myositis is a rare disease associated with impaired health-related quality of life. A study evaluating the efectiveness of an intervention to improve the quality of life and well-being of myositis patients is presented. Methods: All myositis patients in a health district were contacted. Thirty-four eligible patients were randomly assigned to the experimental (n=17) or control (n=17) group. A psychoeducational intervention of 5 100-min sessions focusing on the disease as related to daily life was conducted only in experimental patients. Several reliable tools to measure quality of life and well-being were administered twice, before and after the intervention, to both groups. Results: In the experimental group, post-test scores were higher than pre-test in quality of life, well-being, and selfefcacy to manage the disease. Improvements were more evident in the experimental group than controls in 70% of the variables studied. Specifcally, sedentariness decreased and satisfaction with social relationships increased in the post-test evaluation to a greater degree in the experimental group than in controls. Conclusions: This randomized controlled trial on a representative sample of myositis patients in an extensive population provides evidence indicating the efectiveness of a psychoeducational intervention for improving HRQoL, wellbeing, and self-efcacy to manage the disease.

Matèries

Investigació psicològica, Miositis, Qualitat de vida, Intervenció psicològica

Matèries (anglès)

Psychological research, Myositis, Quality of life, Psychological intervention

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Col·leccions

Articles publicats en revistes (Psicologia Social i Psicologia Quantitativa)

Citació

ARMADANS TREMOLOSA, Immaculada, et al. Effectiveness of a psychoeducational intervention on myositis patients' quality of life and well-being: a randomized controlled trial. Orphanet Journal of Rare Diseases. 2024. Vol. 19, num. 411. ISSN 1750-1172. [consulted: 16 of August of 2026]. Available at: https://hdl.handle.net/2445/219365

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