Miniatura

Fitxers

732678.pdf (1.22 MB)

Tipus de document

Article

Versió

Versió publicada

Data de publicació

2023

Llicència de publicació

cc-by (c) Giusti, Francesco et al., 2023
Si us plau utilitzeu sempre aquest identificador per citar o enllaçar aquest document: https://hdl.handle.net/2445/195646

Cancer treatment data available in European cancer registries: Where are we and where are we going?

Títol de la revista

Autors

Director/Tutor

ISSN de la revista

Títol del volum

Recurs relacionat

https://doi.org/10.3389/fonc.2023.1109978

Resum

Population-based cancer registries are responsible for collecting incidence and survival data on all reportable neoplasms within a defined geographical area. During the last decades, the role of cancer registries has evolved beyond monitoring epidemiological indicators, as they are expanding their activities to studies on cancer aetiology, prevention, and quality of care. This expansion relies also on the collection of additional clinical data, such as stage at diagnosis and cancer treatment. While the collection of data on stage, according to international reference classification, is consolidated almost everywhere, data collection on treatment is still very heterogeneous in Europe. This article combines data from a literature review and conference proceedings together with data from 125 European cancer registries contributing to the 2015 ENCR-JRC data call to provide an overview of the status of using and reporting treatment data in population-based cancer registries. The literature review shows that there is an increase in published data on cancer treatment by population-based cancer registries over the years. In addition, the review indicates that treatment data are most often collected for breast cancer, the most frequent cancer in women in Europe, followed by colorectal, prostate and lung cancers, which are also more common. Treatment data are increasingly being reported by cancer registries, though further improvements are required to ensure their complete and harmonised collection. Sufficient financial and human resources are needed to collect and analyse treatment data. Clear registration guidelines are to be made available to increase the availability of real-world treatment data in a harmonised way across Europe.

Matèries

Càncer, Dades massives, Europa

Matèries (anglès)

Cancer, Big data, Europe

Citació

Col·leccions

Articles publicats en revistes (Ciències Clíniques)

Citació

GIUSTI, Francesco, MARTOS, Carmen, TRAMA, Annalisa, BETTIO, Manola, SANVISENS, Arantza, AUDISIO, Riccardo, ARNDT, Volker, FRANCISCI, Silvia, DOCHEZ, Carine, RIBES PUIG, Josepa, PAREJA FERNÁNDEZ, Laura, GAVIN, Anna, GATTA, Gemma, MARCOS GRAGERA, Rafael, LIEVENS, Yolande, ALLEMANI, Claudia, DE ANGELIS, Roberta, VISSER, Otto, VAN EYCKEN, Liesbet, ENCR Working Group on Treatment Data Harmonisation.. Cancer treatment data available in European cancer registries: Where are we and where are we going?. _Frontiers In Oncology_. 2023. Vol. 13. [consulta: 20 de gener de 2026]. ISSN: 2234-943X. [Disponible a: https://hdl.handle.net/2445/195646]

Exportar metadades

JSON - METS

Compartir registre