Files

674690.pdf (512.89 KB)

Document type

Article

Version

Published version

Publication date

2017

Publication license

cc-by-nc-nd (c) Via i García, Marc, 2017
Please use this identifier to cite or link to this item: https://hdl.handle.net/2445/120966

Big Data in Genomics: Ethical Challenges and Risks

Journal Title

Authors

Director/Tutor

Additional contribution

Journal ISSN

Volume Title

Abstract

Genomic information is a class of Big Data in expanding use thanks to technological developments. Here, we review three categories of ethical risks and challenges associated with genomic information: privacy issues, the management of incidental findings, and challenges in data storage and sharing. First, we need to implement strong mechanisms to protect privacy, but genomic data faces specific risks and we need to acknowledge the possibility of re-identification. Proper usage of genomic information has to be regulated, including recommendations on incidental finding management. Also, clear policies for data sharing and explicit efforts to promote central repositories of genomic data should be established. However, technology and new applications of genetic information will develop fast and we should anticipate potential new risks.

Related resource

https://doi.org/10.1344/rbd2017.41.19190

Subject

Genòmica, Bioètica, Dades massives

Subject (English)

Genomics, Bioethics, Big data

Citation

Collections

Articles publicats en revistes (Psicologia Clínica i Psicobiologia)

Citation

VIA I GARCÍA, Marc. Big Data in Genomics: Ethical Challenges and Risks. Revista de Bioética y Derecho. 2017. Vol. 41, num. 33-45. ISSN 1886-5887. [consulted: 11 of October of 2026]. Available at: https://hdl.handle.net/2445/120966

Export metadata

JSON - METS

Share record