Document type
ArticleVersion
Published versionPublication date
Publication license
Please use this identifier to cite or link to this item: https://hdl.handle.net/2445/185021
European expert network on rare communicable diseases and other rare diseases linked to mobility and globalisation focused on ealth care provision (EURaDMoG): a feasibility study.
Journal Title
Director/Tutor
Journal ISSN
Volume Title
Related resource
Abstract
INTRODUCTION NlmCategory: BACKGROUND content: In the current mobility and globalization context, there is a growing need to identify potential changes on the pattern of diseases in the European Union (EU)/European Economic Area (EEA)
and provide accurate diagnosis and treatment for the population.
The pattern of rare communicable diseases that can affect people
returning to EU/EEA from travel abroad, visiting EU/EEA or
establishing in the EU/EEA is of special relevance. The
objective of this manuscript is to give an overview about the
EURaDMoG study and discuss the feasibility of establishing a
European network on rare communicable diseases and other rare
conditions linked to mobility and globalization. - Label:
METHODS NlmCategory: METHODS content: We undertook a three-steps
process where we first conducted a narrative review to estimate
the prevalence and incidence and to list rare communicable and
non-communicable diseases linked to mobility and globalization
in the EU/EEA; second, we organized an international
consultation workshop with experts in the diseases previously
selected; and finally, the feasibility study analysed how
successful a European expert network on rare diseases linked to
mobility and globalization focused on health care provision
would be, accounting for different operational and also
sustainability criteria. - Label: RESULTS NlmCategory: RESULTS
content: "First, considering the areas or topics that the
network should cover, it was concluded that communicable and
non-communicable rare diseases linked to mobility and
globalization should be differentiated. Second, since all
non-communicable rare diseases linked to mobility and
globalization identified are already covered by different
European Reference Networks (ERNs), there is no need for them to
be included in a new European network. Three scenarios were
considered for establishing a potential European network for
rare communicable diseases linked to Mobility and Globalisation
with a focus on Health Care provision: 1) To maintain the
current situation \"Status Quo\" scenario; 2) to create a
specific European expert network (EEN) on rare communicable
diseases linked to mobility and globalisation; 3) to develop a
new ERN on communicable rare diseases linked to mobility and
globalisation." - Label: CONCLUSIONS NlmCategory: CONCLUSIONS
content: Since the focus is the provision of health care, an ERN
could have the potential to better boost the quality of care
being facilitated by technological tools and online platforms
that permit the safe and ethically acceptable exchange of data.
However, this potential new network should not eclipse current
existing networks and they should be complementary.
Subject (English)
Citation
Collections
Citation
REQUENA MÉNDEZ, Ana, et al. European expert network on rare communicable diseases and other rare diseases linked to mobility and globalisation focused on ealth care provision (EURaDMoG): a feasibility study. Orphanet Journal of Rare Diseases. 2020. Vol. 15. ISSN 1750-1172. [consulted: 9 of June of 2026]. Available at: https://hdl.handle.net/2445/185021