Evaluating quality of life in pediatric palliative care: a cross-sectional analysis of children’s and parents’ perspectives

dc.contributor.authorToro, Daniel del
dc.contributor.authorLimonero, Joaquin T.
dc.contributor.authorGuillén, Montserrat
dc.contributor.authorBolancé Losilla, Catalina
dc.contributor.authorNavarro Vilarrubí, Sergi
dc.contributor.authorCamprodon-Rosanas, Ester
dc.date.accessioned2024-06-19T22:41:55Z
dc.date.issued2024-03-01
dc.date.updated2024-06-19T22:42:00Z
dc.description.abstractThe patient’s perspective is an essential component of understanding the individual experience of suffering in children with palliative needs, but it is a perspective that is often overlooked. The aim of this study was to compare the perception of quality of life (QoL) of children with life-limiting and life-threatening conditions expressed by the children themselves and their parents. Through a cross-sectional study, the responses of 44 parent–child dyads were obtained and the analysis was performed with the statistics based on Student’s t distribution and non-parametric tests
dc.format.extent10 p.
dc.format.mimetypeapplication/pdf
dc.identifier.idgrec747802
dc.identifier.issn0340-6199
dc.identifier.urihttps://hdl.handle.net/2445/213435
dc.language.isoeng
dc.publisherSpringer Verlag
dc.relation.isformatofReproducció del document publicat a: https://doi.org/10.1007/s00431-023-05330-4
dc.relation.ispartofEuropean Journal of Pediatrics, 2024, vol. 183, num.3, p. 1305-1314
dc.relation.urihttps://doi.org/10.1007/s00431-023-05330-4
dc.rightscc by (c) Toro et al., 2024
dc.rights.accessRightsinfo:eu-repo/semantics/openAccess
dc.rights.urihttp://creativecommons.org/licenses/by/3.0/es/*
dc.sourceArticles publicats en revistes (Econometria, Estadística i Economia Aplicada)
dc.subject.classificationTractament pal·liatiu
dc.subject.classificationInfants malalts
dc.subject.classificationQualitat de vida
dc.subject.otherPalliative treatment
dc.subject.otherSick children
dc.subject.otherQuality of life
dc.titleEvaluating quality of life in pediatric palliative care: a cross-sectional analysis of children’s and parents’ perspectives
dc.typeinfo:eu-repo/semantics/article
dc.typeinfo:eu-repo/semantics/publishedVersion

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