Please use this identifier to cite or link to this item: https://hdl.handle.net/2445/225977
Real-life use of validated quality of life questionnaires in patients with pulmonary arterial hypertension in Spain. A cross-sectional study
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This study aimed to determine how often health-related quality of life (HRQoL) is assessed in patients with pulmonary arterial hypertension (PAH) and to elucidate which tools are most frequently used in a real-life setting. We conducted a multicentric retrospective cross-sectional analysis of 3628 PAH patients enrolled in the Spanish Registry of Pulmonary Arterial Hypertension (REHAP) from 2007 to 2023. HRQoL questionnaires were used in only 67 patients (1.8%). Among them, generic tools were the most used (SF-36 in 16.9% and EQ5D in 10.2%). These findings highlight a marked underutilization of HRQoL assessment tools in PAH patients included in REHAP.
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CARMONA SEGOVIA, Ada D. M., et al. Real-life use of validated quality of life questionnaires in patients with pulmonary arterial hypertension in Spain. A cross-sectional study. 2025. vol. 24. Vol. 7, num. 1172-1174. ISSN 1474-5151. [consulted: 17 of June of 2026]. Available at: https://hdl.handle.net/2445/225977