Real-life use of validated quality of life questionnaires in patients with pulmonary arterial hypertension in Spain. A cross-sectional study

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dc.contributor.authorCarmona Segovia, Ada D. M.
dc.contributor.authorBecerra Muñoz, Victor M.
dc.contributor.authorJiménez Arjona, María Josefa
dc.contributor.authorNaranjo Velasco, Virginia
dc.contributor.authorOchoa, Nuria
dc.contributor.authorBarberà i Mir, Joan Albert
dc.contributor.authorLópez Meseguer, Manuel
dc.contributor.authorMorales Asencio, José Miguel
dc.contributor.authorBlanco Vich, Isabel
dc.contributor.authorEscribano Subías, Pilar
dc.date.accessioned2026-01-22T16:22:56Z
dc.date.available2026-01-22T16:22:56Z
dc.date.issued2025-10-22
dc.date.updated2026-01-22T16:22:56Z
dc.description.abstractThis study aimed to determine how often health-related quality of life (HRQoL) is assessed in patients with pulmonary arterial hypertension (PAH) and to elucidate which tools are most frequently used in a real-life setting. We conducted a multicentric retrospective cross-sectional analysis of 3628 PAH patients enrolled in the Spanish Registry of Pulmonary Arterial Hypertension (REHAP) from 2007 to 2023. HRQoL questionnaires were used in only 67 patients (1.8%). Among them, generic tools were the most used (SF-36 in 16.9% and EQ5D in 10.2%). These findings highlight a marked underutilization of HRQoL assessment tools in PAH patients included in REHAP.
dc.format.extent9 p.
dc.format.mimetypeapplication/pdf
dc.identifier.idgrec762401
dc.identifier.issn1474-5151
dc.identifier.pmid40622849
dc.identifier.urihttps://hdl.handle.net/2445/225977
dc.language.isoeng
dc.relation.isformatofhttps://doi.org/10.1093/eurjcn/zvaf108
dc.relation.ispartof2025, vol. 24, num.7, p. 1172-1174
dc.relation.urihttps://doi.org/10.1093/eurjcn/zvaf108
dc.rightscc-by-nc (c) Carmona Segovia, Ada D. M. et al., 2025
dc.rights.accessRightsinfo:eu-repo/semantics/openAccess
dc.rights.urihttp://creativecommons.org/licenses/by-nc/4.0/
dc.sourceArticles publicats en revistes (Medicina)
dc.subject.classificationHipertensió pulmonar
dc.subject.classificationQualitat de vida
dc.subject.classificationQüestionaris
dc.subject.otherPulmonary hypertension
dc.subject.otherQuality of life
dc.subject.otherQuestionnaires
dc.titleReal-life use of validated quality of life questionnaires in patients with pulmonary arterial hypertension in Spain. A cross-sectional study
dc.typeinfo:eu-repo/semantics/article
dc.typeinfo:eu-repo/semantics/

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